Thursday, September 27, 2018

Remembering Our First Two Years

We are quickly approaching Lucy's second birthday. Two years. Two years of this precious life. As October 6th draws near, I find myself reminiscing more and more about what these past two years have looked like. Trying to remember those earliest days with her. Trying to recount what our days looked like when we first brought her home.

It's amazing how quickly and easily you can forget.

When you're in the midst of your days and your seasons, you always think, "There's no way I could forget all this." But somehow we do.

Lucy has become such a "normal" toddler. But honestly, what even is "normal?" I hate to even use that word. Maybe I should say "easy," but no toddler is easy. So regardless of what word I should or shouldn't use... life with her has just gotten abundantly easier.

We started out at home with a g-tube, an IV pole, a PulsOx monitor, a baby scale, home health visits, occupational therapy, physical therapy, cardiology appointments every 3 weeks, massive spit ups/vomits, condensing feeds trying to stretch her stomach to handle larger volumes, more vomitting, g-tube coming out which required a trip to the ER, heart surgery #2, dangerously low glucose level and another trip to the ER (because momma pushed too hard to get her to eat by mouth - big oops!), thickening liquids to help her drink by mouth, and the list goes on!

Where are we now? Well. If I were to cross out the things I listed above... I wouldn't have a list. Let me re-phrase that... I don't have a list!

Today, our days look very much like typical toddler days. Sure, she takes medicine 3 x's a day for arrhythmias, and she's got battle scars galore on her tiny body. But other than that, she's just a feisty little 2 year old who wants to do everything by herself, and she drives me absolutely insane!

Yes, she drives me insane. But let me counter that and also say, I literally cannot form words to put together a sentence to adequately convey the depth of my love for this little girl. I can't explain to you the fear that pulsed through my veins at the thought of losing her during those early days in CVICU. This is the little girl I've dreamed of since the day I told my mom (2 weeks before she left this earth), "Mom, someday if David and I have a little girl, I want to name her Lucy."

Why Lucy? Here is a snippet from one of my previous posts:

My mom's name was Janet, but Lucy was the sweetest nickname my dad called her. He never called her Janet - it was always Lucy. Okay, I can recall one time he called her Janet, and it was the strangest thing I ever heard come out of his mouth. Lucy. Her name, from him, was Lucy.
Lucy. Just her name... I just can't even tell you the sweetness of it. The sweetness of her.  Yes, she has her moments of being a complete toot (as does every toddler). But ask anyone who knows her... Lucy's personality is full of so much life, and laughter, and goofiness, and she knows it. The girl knows how to put on a show. She makes the funniest faces. She does the silliest little awkward walk when people are staring at her and she doesn't know what else to do (if you've seen it, you know exactly what I'm talking about). She is learning how to talk now, and every new word that comes out her mouth... I just melt and ooh and ahh, and I just literally can't get enough of her.

If my husband reads this post, he will probably question everything I'm saying here. He sees the ugly side of my attitude toward her most days. I'll be honest and say I'm not a very patient person, and she knows how to push my buttons like no one else. But behind all my ugly moments with her, in the depths of my soul, I just love her beyond words. I wish I could package her up and send her to every single one of you reading this so you could experience her! I mean, good grief! She is alive and well today because of thousands and thousands of your prayers!

I can never ever thank everyone enough for all your prayers. We will be eternally grateful, and I mean that deeply. Eternally grateful. Thank you. Thank you for petitioning for and for fighting for life for our sweet girl.

I don't know where to go from there, so for now I will just end with some of my favorite pictures of our girl! Enjoy!

Snaggle-toothed girl



Sweet little somber Lucy, showing your that her
g-tube is gone!





Lucy and Hank :)


29 comments:

  1. I've missed hearing from you & have wondered how all of you are - so glad for this good news update! I was one who cried my way through your mother's illness & death. Come again before long, please.

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    1. THANX TO DOCTOR OSAZE WHO CURE ME FROM HERPES SIMPLEX AND HAERT DIESEASE WITH HIS HERBAL MEDICATION, MY ENTIRE LIFE WAS BECOMING MISERABLE WHEN I CONTACTED THESE DIESEASES, I WENT TO DIFFERENT HOSPITAL IN NEWYORK AND CONNECTICUT TO NO AND VAIL, UNTIL I CAME ACROSS DOCTOR OSAZEE'S TESTIMONIES ONLINE ON HOW HE HAS BEEN USING HIS HERBS TO CURE PEOPLE OF HERPES DIESEASES, AND I DICIDED TO CONTACT HIM AND GIVE HIS MEDICATION A TRY, WITHIN ONE MONTH AND A WEEK I WAS TOTALLY CURED, IN CASE YOU ARE GOING THROUGH SIMILAR PROBLEM AND YOU WANTS TO CONTACT DR OSAZEE, YOU CAN EMAIL HIM ON: DROSAZEHERBAL@GMAIL.COM OR CALL OR WHATSAP HIM ON: +2347089275769

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    2. I want to write a little testimony about the good work of doctor ehiaguna who cured me from Hsv 1 and 2 for just 2 week with his herbal medicine, I never believe I can be normal again and have a good life like others I always regretted the day I got diagnose with the virus, I was lost of hope when my doctor told me there is no cure for it but I keep thinking and thinking about my future, if I can have kids of my own well I am so grateful for my helper who get me cured with his herbal medicine, I go online in search of anything that can help me because I can’t deal with it forever so I found this Dr ehiaguna email on a Facebook of someone who was cured by him I quickly contact him for help and explain all my pain to him, he told me not to worry about it there is cure for real, I never believe until he send me the herbal medicine when I order for it and I have it within 4 days that is how I took the medicine for 2 week and the following week I go for test just to confirm I was 100% cured from this sickness what a miracle in my life I am so happy right now, you can also get in contact with him if you have such sickness through drehiaguna@gmail.com and also WhatsApp him +2348073908953. he can also help with this following sickness DIABETES CURE/EPILESY/HPV/CURE/LUPUS/HEPATITIS

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    3. HOW DR EDIDIA CURE MY HERPES INFECTION HIS HERBAL MEDICINE IS VERY POWERFUL TO CURE ANY DEADLY ILLNESS MORE INFORMATION WEB/SITE https://dredidiaherbalhome.wixsite.com/dredidiaherbalhome    

      this is unbelievable i have be suffering for Herpes Infection Dr.Edidia who helped me in my life, i want to inform the public how i was cured from Herpes Infection by Dr.Edidia,i visited different hospital but they gave me list of drugs like Famvir, Zovirax, and Valtrex which is very expensive to treat the symptoms disease and never cured me. I was browsing through the Internet searching for remedy on Herpes infection and i saw so many blogs comment of people talking about how Dr Edidia cured them.so i contacted him he gave me hope and send a Herbal medicine to me that i took and it seriously worked for me,experiencing changes all over me as the great Dr.Edidia assured me that i have been cured,after some time i went to the doctor to confirmed if i have be finally healed behold it was TRUE,my Herpes infection out negative.my prayer for Dr Edidia am cured you can also get your self and friends i will advise if you have any sickness at all you can contact now:dredidiaherbalhome@gmail.com or cell whatsapp number:+2349126592869 

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  2. I am so excited that you are able to share the terrible or terrific twos with Lil Lucy! She is a true motacle!

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  4. But Dr. Itua, Traditional Herbal Practitioner in Africa, Have cured for HIV which is extracted from some rare herbals. It is highly potential to cure AIDS 100% without any residue. Dr Itua herbal medicine has already passed various blogs on how he use his powerful herbals to heal all kind of diseases such as. Herpes, HIV,,Cushing’s disease,Heart failure,Multiple Sclerosis,Hypertension,Colo_Rectal Cancer, Diabetes, Hepatitis,Hpv,Weak ErectionLyme Disease,Blood Cancer,Alzheimer’s disease,Bechet’s disease,Crohn’s disease,Parkinson's disease,Schizophrenia,Lung Cancer,Breast Cancer,Colo-Rectal Cancer,Blood Cancer,Prostate Cancer,siva.Fatal Familial Insomnia Factor V Leiden Mutation ,Epilepsy Dupuytren's disease,Desmoplastic small-round-cell tumor Diabetes ,Coeliac disease,Creutzfeldt–Jakob disease,Cerebral Amyloid Angiopathy, Ataxia,Arthritis,Amyotrophic Lateral Scoliosis,Fibromyalgia,Fluoroquinolone Toxicity,Brain Cancer,Breast Cancer,Lung Cancer,Kidney Cancer,Syndrome Fibrodysplasia Ossificans ProgresSclerosis,Seizures,Alzheimer's disease,Adrenocortical carcinoma.Asthma,Allergic diseases.Hiv_ Aids,Herpe ,Copd,Glaucoma., Cataracts,Macular degeneration,Cardiovascular disease,Lung disease.Enlarged prostate,Osteoporosis.Alzheimer's disease,

    Dementia.,Wart Remover,Cold Sore, Epilepsy, also his herbal boost immune system as well. I'm telling this because he uses his herbal medicine to cure me from hepatitis B and HIV, which i have being living for 9 months now with no side effect. The Herbal Medicine is just as good when drinking it although i have to use rest room after drinking it which I do not really care about because i just want to get the virus out of my body, I will recommend Dr Itua to anyone sick out here to contact Dr Itua with this following information.

    Email...drituaherbalcenter@gmail.com / info@drituaherbalcenter.com
    Whatsapp Or Call...+2348149277967.
    He might be late to respond because he always busy with patent, but he will surely get back to you with positive response.

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  5. I’m Katty morgan from the States.I want to use this medium to appreciate Mrs Julia for coming on the platform to share her experience with Dr osuma i have been online looking for a genuine remedy to my illness of 5 years HIV until i read Mrs Julia post.As we all know these days the truth is rear so i didn’t want to believe Mrs Julia until a second taught asked me to.I contacted Dr osuma as directed by Mrs Julia and follow the procedures and everything worked out in a brief.I thought there was no actual cure for HIV until a little trial convinced me.i was cured after 3 weeks of usage of Dr osuma great herbal medicine,he has a cure for what so ever health challenging issue HIV,TB,VERTEBRAL ISSUE,CANCER,DIABETES,ISCHEMIC DISEASES,STROKE,RESPIRATORY INFECTIONS,PULMONARY DISEASE,ALZHEIMER”S DISEASE,DEHYDRATION,CIRRHOSIS ETC.You can contact him via his Email (drosumaherbalcure@gmail.com)or his whats-app number +2349054914348

    You can as well go through his website (http://drosumaherbalcure.weebly.com)

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  6. WHAT A GREAT MIRACLE THAT I HAVE EVER SEE IN MY LIFE. My names are Clara David I’m a citizen of USA, My younger sister was sicking of breast cancer and her name is Sandra David I and my family have taking her to all kind of hospital in USA still yet no good result. I decided to search for cancer cure so that was how I found a lady called Peter Lizzy. She was testifying  to the world about the goodness of a herbal man who has the roots and herbs to cure all kinds of disease and the herbal man's email was there. So I decided to contact the herbal man @herbalist_sakura for my younger sister's help to cure her breast cancer. I contacted him and told him my problem he told me that I should not worry that my sister cancer will be cure, he told me that there is a medicine that he is going to give me that I will cook it and give it to my sister to drink for one week, so I ask how can I receive the cure that I am in USA, he told me That I will pay for the delivery service. The courier service can transport it to me so he told me the amount I will pay, so my dad paid for the delivery fee. two days later I receive the cure from the courier service so I used it as the herbal man instructed me to, before the week complete my sister cancer was healed and it was like a dream to me not knowing that it was physical I and my family were very happy about the miracle of Doctor so my dad wanted to pay him 5 million us dollars the herbal man did not accept the offer from my dad, but I don't know why he didn't accept the offer, he only say that I should tell the world about him and his miracle he perform so am now here to tell the world about him if you or your relative is having any kind of disease that you can't get from the hospital please contact dr.sakuraspellalter@gmail.com or whats app him +2348110114739  you can follow him up on Instagram @herbalist_sakura for the cure, he will help you out with the problem. And if you need more information about the doctor you can mail me davidclara223@gmail.com 

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  7. Hello, I want to write a little review about the good work of doctor Ojamo, who cured me from HSV 1&2 for just 2 week with his herbal medicine, I never believe I can be cured again and have a good life like others, I always regretted the day I got diagnose with this virus, I become lost of hope when my doctor told me there is no cure for it, Well I am so grateful for my helper who get me cured with his herbal medicine, I went online in search of anything that can help me because I can’t deal with it forever so I found dr Ojamo email dr.ojamoherbalhome@gmail.com on a blog of someone who was cured by him,of the same herpes, so I quickly contacted him for help and explained all my pains to him, he told me not to worry about it there is a cure for real, I never believe until he sent me the herbs when I ordered for it and I got it within 5 working days that is how I took the medicine for 2 weeks and the following week I went for a test just to confirm I was 100% cured from this sickness what a miracle in my life, I am so happy right now, and forever greatful, you can also get in contact with him if you have such sickness through his whatsapp +2349077406037 or email address:: dr.ojamoherbalhome@gmail.com

    ReplyDelete
  8. My health was horrible before I decided to try the Protocol Of taking Dr. Omola pure herbal mixture. I felt there was no hope for my health and I was to try the Protocol, thinking it wouldn’t work because I have visited so many hospital but same result. However, I was convinced by a Instagram friend to try the herbal medicine because I wanted to get rid of Herpes virus. The herbal mixture that was given to me was really quick and easy to take, within 2 week I was fully cured from Herpes. The herbal medicine really work and I will like to share this great doctor contact with you all email him dr.omolaherbalhome@gmail.com or WhatsApp +2348118116254 you won't regret it, I promise.

    ReplyDelete
  9. I want to write a little testimony about the good work of doctor ehiaguna who cured me from Hsv 1 and 2 for just 2 week with his herbal medicine, I never believe I can be normal again and have a good life like others I always regretted the day I got diagnose with the virus, I was lost of hope when my doctor told me there is no cure for it but I keep thinking and thinking about my future, if I can have kids of my own well I am so grateful for my helper who get me cured with his herbal medicine, I go online in search of anything that can help me because I can’t deal with it forever so I found this Dr ehiaguna email on a Facebook of someone who was cured by him I quickly contact him for help and explain all my pain to him, he told me not to worry about it there is cure for real, I never believe until he send me the herbal medicine when I order for it and I have it within 4 days that is how I took the medicine for 2 week and the following week I go for test just to confirm I was 100% cured from this sickness what a miracle in my life I am so happy right now, you can also get in contact with him if you have such sickness through drehiaguna@gmail.com and also WhatsApp him +2348073908953. he can also help with this following sickness DIABETES CURE/EPILESY/HPV/CURE/LUPUS/HEPATITIS

    ReplyDelete
  10. Living with herpes virus was the worst situation I've ever been in due to work and tending to my family needs but finally tested negative after using the herbal medicine I ordered from him. His Email drodiagbesolutionhome@gmail. com

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  11. Good day everyone, it's hard to believe that herbal medicine can cure herpes, I never believe that this will work, I have to spend a lot of money getting drugs from the hospital to keep me and my son healthy, it got to a point that I was waiting for death to come because I was broke, one day I hard about this great man called Dr. Abolo who is well know for Herpes, HIV, and cancer cure, I decided to email him I didn't believe him that much, I just wanted to give him a try, he replied to my mail and Needed some Information about me, then I sent them to him, he prepared herbal medicine and he gave my details to the Courier Office. they told me that in 4-6 days I will receive the package and after receiving it, I took the medicine as prescribed by him at the end of two weeks, he told me to go to the hospital for a check-up, and I went, surprisingly after the test the doctor confirm me Herpes simplex virus-negative, and my son and I thought it was a joke, I went to another hospital and was also negative, thank you for saving our life's, I promise I will always testify of your good works. if you are a herpes simplex virus patient, contact him and I am sure you will get cured, contact him on his Email@ draboloherbalhome@gmail.com or contact him on his whatSApp number +234744725611
    THESE ARE THE THINGS Dr. WILLIAMS CAN CURE
    . HERPES
    . HIV/AIDS
    . CANCER
    . DIABETES
    . LASSA FEVER
    . GONORRHEA
    . MENOPAUSE DISEASE
    . EPILEPSY

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  12. God bless Dr. maggi for his marvelous work in my life, I was diagnosed of Hsv and I was taking my medications, I wasn’t satisfied i needed to get the Hsv out of my system, I searched about some possible cure for Hiv, i saw a comment about Dr. maggi, how he cured HIV, HERPES, DIABETES and CANCER with his herbal medicine, I contacted him and he guided me. I asked for solutions, he started the remedy for my healing, he sent me the medicine through UPS SPEED POST. I took the medicine as prescribed by and 8 days later i was cured from Hsv, Dr. Maggi truly, you are great, do you need his help also? Why don’t you contact him through drmaggiherbalhome@gmail.com or whatsApp him on +19179796387

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  13. I'm here to appreciate Dr Ojamo for using his herbal medicine to cure my Herpes virus, I tested positive of this virus two years ago and since then I have been suffering from this virus so one morning I was browsing through the internet then I saw several testimonies about Dr Ojamo curing people from Herpes virus and immediately I contacted him on his emai>> dr.ojamoherbalhome@gmail.com and I told him about my troubles and he told me that I will get cured, He gave me some instructions which I rightly followed so he prepared a herbal medicine and sent it to me which I used for for a week and everything was like a dream to me and the Herpes virus was totally gone when I went back to the hospital and it came out negative and all the symptoms were gone. Why don't you reach him today and be free from diseases like herpes because he is a very good and honest herbal Doctor. contact him and get your life back. You can call him or whatsapp him via +2349077406037 or you can email him via>> dr.ojamoherbalhome@gmail.com

    ReplyDelete
  14. Dr.Excel herbal medicine is a good remedy for Herpes, I was a carrier of Herpes until I saw a testimonies on how Dr. Excel cures Herpes with herbal meds, I decided to contact him and he guided me on what to do and he prepared and send the remedy to me for my health. Thank God now everything is fine, I'm cured by Dr. Excel herbal medicine, I'm very thankful to him, reach him on his website https://Excelherbalcure.com you can talk with him on the phone +1 (859) 429 1007

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  15. I Recommend DR Harry Herbs who cure me from Herpes with his Herbs Remedy and today i'm cue and free from the virus.
    His Email Drharryherbspell01@gmail.com
    website http://Doctorharryherbs.com

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  16. Its a pleasure for me to write this testimony about how i got my Genital Herpes simplex been reading so many comments of some people who were cured from various diseases by Dr ubarlo but i never believed them. I was hurt and depressed so I was too curious and wanted to try Dr ubarlo, then i contacted him through his email when i contact him, he assured me 100% that he will heal me, i pleaded with him to help me out. My treatment was a great success, he healed me just as he promised. he sent me his medication and ask me to go for check up after one weeks of taking the medication. i agreed with him i took this medication and went for check up a , to my greatest surprise my result was negative after the treatment, i am really happy that i am cured and healthy again. I have waited for 3weeks to be very sure i was completely healed before writing this testimony. I did another blood test one week ago and it was still Herpes negative. so i guess its time i recommend anyone going through Herpes HSV-1 or HSV-2, HIV, HPV, Hepatitis B, Diabetes, Cancer reach him through Email drubarlohome@gmail.com OR add on whatsapp +2348119508814

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  17. I got diagnosed with herpes, I have been dealing with herpes for the past 4 years. Until I got a review online about natural cure people testifying how Dr Ajayi cure them with his herbal treatment. And I ordered the treatment, after taking the herbs I was totally cured. I'm recommending you diagnosis with herpes should get this treatment and be cured of it you can contact his email address via; ajayiherbalhome@gmail.com also call or WhatsApp him +2348154724883 or visit his website https://ajayiherbalhome.weebly.com for more information. Thanks once again Dr Ajayi for curing me, may the lord reward you...

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  18. Am really grateful and thankful for what
    DR OGBEIFUN has done for me and my family. I have be suffering from Lupus for good three years with no solution, the disease almost took my life and because I was unable to work and I was also losing lots of money for medication, but one faithful day when I went online, I met lots of testimonies about this great man so I decided to give it a try and to God be the glory he did it. If you need his help or you also want to get cured just the way I got mine, just email him on..



    FOLLOW YOUTUBE CHANNEL: 👇👇👇👇

    https://youtube.com/channel/UCyjTV3aK66o41h-TKyHn4dg

    EMAIL ADDRESS: DROGBEIFUNHERBALHOME1@GMAIL.COM

    WHATSAPP: +2348050680253

    WEBSITE: https://doctorogbeifun.wixsite.com/drogbeifunherbalho-1

    ETC.....
    🙏🙏And get your healing, He also has a cure for other deadly diseases like Herpes, high blood pressure, Hepatitis, Cancer, Lupus etc..

    ReplyDelete
  19. To all infection, sickness or virus There is always a Herbal Treatment for it. Contact Doctor Akhidenor akhidenorherbalhome@yahoo.com and WhatsApp +234802132463 if you suffer from:

    Influenza and pneumonia, Nephritis, nephrotic syndrome, and nephrosis, Chronic lower respiratory diseases

    Autism and Epilepsy

    Human Immunodeficiency Virus (HIV) and Acquired Immune Deficiency Syndrome
    (AIDS)...

    Chlamydia.Gonorrhea.Pelvic Inflammatory Disease (PID)....

    Genital Warts and Human Papillomavirus (HPV)...

    Genital Herpes (HSV-1, HSV-2... Syphilis.... And Get Healed Naturally With Roots And Herbs
    https://wa.me/message/DJEUCL4WNA5VO1

    ReplyDelete
  20. A VERY SHORT STORY HOW I GOT CURED FROM HERPES SIMPLEX VIRUS (HSV2)
    Herpes simplex virus is said to have no cure, just as i was told by my family doctor that herpes can not be cured but can be controlled, Although i was a very stubborn person i never believed in what my doctor told me about herpes having no cure Am a very honest person who believe in nature and i also believed that there could be cure somewhere in the world, I kept my faith so strong and kept on doing my research till i finally came across Dr. Aza Blessed from west Africa He is one of the oldest herbalist after Dr. Sebi and total am a living testimony to his herbal cure to herpes, i became herpes Negative on the 17/05/2021 after using the herbal medication DR. Aza BLESSED mailed to me along with the prescriptions and today its been 2 years and herpes is not traceable in my body system, All thanks To Dr. Aza BLESSED For More Info on how to get cured Contact DR . Aza now on EMAIL : (drazaherbalcenter@gmail.com ) Or CALL/WHATS APP (+1(315) 795 1518 ) or his website:www.drazaherbalcenter.com ..

    ReplyDelete
  21. I was diagnosed with herpes, I have been dealing with herpes for the past 4 years. Until I got a review online about natural cure people testifying how Dr Ajayi cure them with his herbal treatment. And I ordered the treatment, after taking the herbs I was totally cured. I'm recommending you out there somebody or anybody diagnosed with herpes should get this treatment and be cured of it you can contact his email address via; ajayiherbalhome@gmail.com also call or WhatsApp him +2348119071237 or visit his website https://ajayiherbalhome.weebly.com for more information. Thanks once again Dr Ajayi for curing me, may the lord reward you...

    ReplyDelete
  22. First, I want to complement this page administrator for creating this platform for us to express our feelings. Herpes is a serious and recurring disease which can't be cured through drugs or injections by the American doctors but the best way to deal with herpes is by taking natural herbs medicine from Dr Moi the greatest herbalist doctor in the world and is only few American doctors that know about this herbal medicine from Dr Moi .. I have read about Dr Moi the great herbalist doctor from African who can cure disease with his powerful herbal medicine. for the people suffering from the following diseases, Herpes,HIV/Aids, Cancer, Also, Hepatitis, Diabetes, Hpv, Infections ETC should contact him for his herbal medicine because i am a living testimony and i was cured of herpes. Although, i sent him what he requested and he sent me his medicine through UPS courier delivery company which i took for 2 weeks and today when i went for test i was tested herpes negative. you can reach him through his email: dr_moisolutiontemple@yahoo.com Whatsapp him Directly Through +254772376126




    ReplyDelete
  23. Are you suffering from any of this disease/infection like herpes virus, HPV, hepatitis, cancer, ADHD or any kind of disease and you have been searching for a cure and you haven’t found any and you’re about to give up. Well, I’m here to let you know that all hope is not lost, Dr Kokobi is here to help you. His herbal Centre is a place where you can get a permanent cure to any kind of illness/disease you’re suffering from. So kindly message him now via kokobiherbalremedycentre@gmail.com or WhatsApp +2349055346858 For a cure

    ReplyDelete