Thursday, September 27, 2018

Remembering Our First Two Years

We are quickly approaching Lucy's second birthday. Two years. Two years of this precious life. As October 6th draws near, I find myself reminiscing more and more about what these past two years have looked like. Trying to remember those earliest days with her. Trying to recount what our days looked like when we first brought her home.

It's amazing how quickly and easily you can forget.

When you're in the midst of your days and your seasons, you always think, "There's no way I could forget all this." But somehow we do.

Lucy has become such a "normal" toddler. But honestly, what even is "normal?" I hate to even use that word. Maybe I should say "easy," but no toddler is easy. So regardless of what word I should or shouldn't use... life with her has just gotten abundantly easier.

We started out at home with a g-tube, an IV pole, a PulsOx monitor, a baby scale, home health visits, occupational therapy, physical therapy, cardiology appointments every 3 weeks, massive spit ups/vomits, condensing feeds trying to stretch her stomach to handle larger volumes, more vomitting, g-tube coming out which required a trip to the ER, heart surgery #2, dangerously low glucose level and another trip to the ER (because momma pushed too hard to get her to eat by mouth - big oops!), thickening liquids to help her drink by mouth, and the list goes on!

Where are we now? Well. If I were to cross out the things I listed above... I wouldn't have a list. Let me re-phrase that... I don't have a list!

Today, our days look very much like typical toddler days. Sure, she takes medicine 3 x's a day for arrhythmias, and she's got battle scars galore on her tiny body. But other than that, she's just a feisty little 2 year old who wants to do everything by herself, and she drives me absolutely insane!

Yes, she drives me insane. But let me counter that and also say, I literally cannot form words to put together a sentence to adequately convey the depth of my love for this little girl. I can't explain to you the fear that pulsed through my veins at the thought of losing her during those early days in CVICU. This is the little girl I've dreamed of since the day I told my mom (2 weeks before she left this earth), "Mom, someday if David and I have a little girl, I want to name her Lucy."

Why Lucy? Here is a snippet from one of my previous posts:

My mom's name was Janet, but Lucy was the sweetest nickname my dad called her. He never called her Janet - it was always Lucy. Okay, I can recall one time he called her Janet, and it was the strangest thing I ever heard come out of his mouth. Lucy. Her name, from him, was Lucy.
Lucy. Just her name... I just can't even tell you the sweetness of it. The sweetness of her.  Yes, she has her moments of being a complete toot (as does every toddler). But ask anyone who knows her... Lucy's personality is full of so much life, and laughter, and goofiness, and she knows it. The girl knows how to put on a show. She makes the funniest faces. She does the silliest little awkward walk when people are staring at her and she doesn't know what else to do (if you've seen it, you know exactly what I'm talking about). She is learning how to talk now, and every new word that comes out her mouth... I just melt and ooh and ahh, and I just literally can't get enough of her.

If my husband reads this post, he will probably question everything I'm saying here. He sees the ugly side of my attitude toward her most days. I'll be honest and say I'm not a very patient person, and she knows how to push my buttons like no one else. But behind all my ugly moments with her, in the depths of my soul, I just love her beyond words. I wish I could package her up and send her to every single one of you reading this so you could experience her! I mean, good grief! She is alive and well today because of thousands and thousands of your prayers!

I can never ever thank everyone enough for all your prayers. We will be eternally grateful, and I mean that deeply. Eternally grateful. Thank you. Thank you for petitioning for and for fighting for life for our sweet girl.

I don't know where to go from there, so for now I will just end with some of my favorite pictures of our girl! Enjoy!

Snaggle-toothed girl



Sweet little somber Lucy, showing your that her
g-tube is gone!





Lucy and Hank :)


15 comments:

  1. I've missed hearing from you & have wondered how all of you are - so glad for this good news update! I was one who cried my way through your mother's illness & death. Come again before long, please.

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    Replies
    1. Happiness is all i see now I never thought that I will be cured from HERPES
      virus again.I have been suffering from a deadly disease (HERPES) for the
      past 5 years now, I had spent a lot of money going from one place to
      another, from churches to churches, hospitals have been my home every day
      residence.Constant checks up have been my hobby not until this faithful day
      I was searching through the internet, I saw a testimony on how DR Ehbos
      Otigbe helped someone in curing his HERPES disease, quickly I copied his
      contact which is just to give him a test I spoke to him, he told me that
      there is no medical hospital that has the cure to HERPES, i was supprise
      when i heard that from, he asked me to do some certain things which I did
      he told me that he is going to provide the herbal cure to me which he did
      then he asked me to go for medical checkup after some days after using the
      herbal cure behold I was free from the deadly disease, he only asked me to
      post the testimony through the whole world, faithfully am doing it now
      please BROTHER, SISTER, MOTHER and FATHER he is great a great man, I owe
      him in return.if you are having a similar problem just email him Via:
      drehbos@gmail.com or you can Whatsapp him Via:
      +2348133505254
      websites;; https://drehbos.wixsite.com/drehbosherbalcenter
      EmaIl address;; drehbos@gmail.com

      Delete
    2. I’m recommending Dr Godday to everyone who have herpes virus to get the cure from him. I was diagnose of genital herpes in 2015 and i have been searching and asking questions to see if i could get something to cure the disease because i did not believe what the doctors say that no cure is found yet. I came across a comment on Youtube and the person testify how she was cured from herpes and hpv after using Dr Godday herbal medicine. I quickly contact Dr email and explain my problem to him and he prepare the herbs and send it to me through courier and gave me instructions on how to use it and tell me to go for checkup after usage which i did after two weeks of taken the herbal medicine and my result was NEGATIVE. I waited another month and retested the result was still NEGATIVE and my doctor told me that am completely free from herpes. Am so happy and grateful to Dr Godday for what he has done for me and i will continue to share this for people out there to know that there is cure for herpes. You can contact Dr Godday on email and WhatsApp to get the cure from him. Email:goddayspiritualhome@gmail.com Or Call/What’s-app +1{919}4956404

      Delete
    3. Good news this is to everyone out there with different health challenges, as I know there are still a lot of people suffering from different health issues and are therefore looking for solutions. I bring you Good news. There is a man called Dr ehiaguna a herbal practitioner who helped cure me from HSV (2), i had suffered from this diseases for the past 5 years and i have spent so much money trying to survive from it. I got my healing by taking the herbal medicine Dr ehiaguna sent to me to drink for about 14 days . 3 days after completion of the dosage, I went for a medical checkup and I was tested free from HSV. all thanks to God for leading me to Dr ehiaguna who was able to cure me completely from this deadly diseases, I’m sharing this so that other people can know of this great healer called Dr ehiaguna because I got to know him through elizabeth who he cured from HIV. I was made to understand that he can cure several other deadly diseases and infections. Don’t die in ignorance or silent and don’t let that illness take your life. Contact Dr ehiaguna through his email  drehiaguna@gmail.com You can also whatsapp/call him on:+2348073908953 . Visit his website  https://effectiveherbalcurehome.blogspot.com/   He cure all forms of disease {1}HIV/AIDS {2}DIABETES {3}EPILEPSY {4} BLOOD CANCER {5} HPV {6} BRAIN TUMOR {7} HEPATITIS {8}COPD{9} SICKLE AND ANAEMIA.etc Be kind enough to share as you received.  

      Delete
  2. I am so excited that you are able to share the terrible or terrific twos with Lil Lucy! She is a true motacle!

    ReplyDelete
  3. An interesting dialogue is price comment. I feel that you need to write extra on this subject, it might not be a taboo topic however usually individuals are not enough to speak on such topics. To the next. Cheers online gambling

    ReplyDelete

  4. But Dr. Itua, Traditional Herbal Practitioner in Africa, Have cured for HIV which is extracted from some rare herbals. It is highly potential to cure AIDS 100% without any residue. Dr Itua herbal medicine has already passed various blogs on how he use his powerful herbals to heal all kind of diseases such as. Herpes, HIV,,Cushing’s disease,Heart failure,Multiple Sclerosis,Hypertension,Colo_Rectal Cancer, Diabetes, Hepatitis,Hpv,Weak ErectionLyme Disease,Blood Cancer,Alzheimer’s disease,Bechet’s disease,Crohn’s disease,Parkinson's disease,Schizophrenia,Lung Cancer,Breast Cancer,Colo-Rectal Cancer,Blood Cancer,Prostate Cancer,siva.Fatal Familial Insomnia Factor V Leiden Mutation ,Epilepsy Dupuytren's disease,Desmoplastic small-round-cell tumor Diabetes ,Coeliac disease,Creutzfeldt–Jakob disease,Cerebral Amyloid Angiopathy, Ataxia,Arthritis,Amyotrophic Lateral Scoliosis,Fibromyalgia,Fluoroquinolone Toxicity,Brain Cancer,Breast Cancer,Lung Cancer,Kidney Cancer,Syndrome Fibrodysplasia Ossificans ProgresSclerosis,Seizures,Alzheimer's disease,Adrenocortical carcinoma.Asthma,Allergic diseases.Hiv_ Aids,Herpe ,Copd,Glaucoma., Cataracts,Macular degeneration,Cardiovascular disease,Lung disease.Enlarged prostate,Osteoporosis.Alzheimer's disease,

    Dementia.,Wart Remover,Cold Sore, Epilepsy, also his herbal boost immune system as well. I'm telling this because he uses his herbal medicine to cure me from hepatitis B and HIV, which i have being living for 9 months now with no side effect. The Herbal Medicine is just as good when drinking it although i have to use rest room after drinking it which I do not really care about because i just want to get the virus out of my body, I will recommend Dr Itua to anyone sick out here to contact Dr Itua with this following information.

    Email...drituaherbalcenter@gmail.com / info@drituaherbalcenter.com
    Whatsapp Or Call...+2348149277967.
    He might be late to respond because he always busy with patent, but he will surely get back to you with positive response.

    ReplyDelete
  5. My symptoms started at the age of 47. My fingers on my left hand were stiff and were difficult to move. People noticed that my walk was not normal. I was often asked did I hurt.I noticed nothing different about my walk. It was difficult getting up from a chair and getting out of a car. I was diagnosed a year later, it was the onset of tremors starting in my right hand that caused my other symptoms to be recognized as Parkinson's.I am now 59. With the new herbal medicine i purchase from totalcureherbalfoundation.blogspot.com was my only way to get fast relief from this PD,their herbal supplement effectively reverse my Parkinson's disease condition and alleviate all my symptoms. 

    ReplyDelete
  6. I’m Katty morgan from the States.I want to use this medium to appreciate Mrs Julia for coming on the platform to share her experience with Dr osuma i have been online looking for a genuine remedy to my illness of 5 years HIV until i read Mrs Julia post.As we all know these days the truth is rear so i didn’t want to believe Mrs Julia until a second taught asked me to.I contacted Dr osuma as directed by Mrs Julia and follow the procedures and everything worked out in a brief.I thought there was no actual cure for HIV until a little trial convinced me.i was cured after 3 weeks of usage of Dr osuma great herbal medicine,he has a cure for what so ever health challenging issue HIV,TB,VERTEBRAL ISSUE,CANCER,DIABETES,ISCHEMIC DISEASES,STROKE,RESPIRATORY INFECTIONS,PULMONARY DISEASE,ALZHEIMER”S DISEASE,DEHYDRATION,CIRRHOSIS ETC.You can contact him via his Email (drosumaherbalcure@gmail.com)or his whats-app number +2349054914348

    You can as well go through his website (http://drosumaherbalcure.weebly.com)

    ReplyDelete
  7. God bless Dr. Omolowa for his marvelous work in my life, I was diagnosed of HERPES since 2018 and I was taking my medications, I wasn't satisfied i needed to get the HERPES out of my system, I searched out some possible cure for HERPES i saw a comment about Dr. Omolowa, how he cured HERPES,DIABETES,HIV,and CANCER with his herbal medicine, I contacted him and he guided me. I asked for solutions, he started the remedy for my health, he sent me the medicine I took the medicine as prescribed by him and 14 days later i was cured from HERPES, Dr. Omolowa truly you are great, do you need his help also? Why don’t you contact him through his EMAIL: dr.omolowa@gmail.com call or whatsApp him on +2347014035034

    ReplyDelete
  8. WHAT A GREAT MIRACLE THAT I HAVE EVER SEE IN MY LIFE. My names are Clara David I’m a citizen of USA, My younger sister was sicking of breast cancer and her name is Sandra David I and my family have taking her to all kind of hospital in USA still yet no good result. I decided to search for cancer cure so that was how I found a lady called Peter Lizzy. She was testifying  to the world about the goodness of a herbal man who has the roots and herbs to cure all kinds of disease and the herbal man's email was there. So I decided to contact the herbal man @herbalist_sakura for my younger sister's help to cure her breast cancer. I contacted him and told him my problem he told me that I should not worry that my sister cancer will be cure, he told me that there is a medicine that he is going to give me that I will cook it and give it to my sister to drink for one week, so I ask how can I receive the cure that I am in USA, he told me That I will pay for the delivery service. The courier service can transport it to me so he told me the amount I will pay, so my dad paid for the delivery fee. two days later I receive the cure from the courier service so I used it as the herbal man instructed me to, before the week complete my sister cancer was healed and it was like a dream to me not knowing that it was physical I and my family were very happy about the miracle of Doctor so my dad wanted to pay him 5 million us dollars the herbal man did not accept the offer from my dad, but I don't know why he didn't accept the offer, he only say that I should tell the world about him and his miracle he perform so am now here to tell the world about him if you or your relative is having any kind of disease that you can't get from the hospital please contact dr.sakuraspellalter@gmail.com or whats app him +2348110114739  you can follow him up on Instagram @herbalist_sakura for the cure, he will help you out with the problem. And if you need more information about the doctor you can mail me davidclara223@gmail.com 

    ReplyDelete
  9. All thanks to Dr.chala for helping me with his herbs to cure my (HERPES VIRUS) right now everything is fine thank God for everything, doctor Chala you are the best i ever meet he is real and can be trusted and also he is the best traditional herbal doctor in West African Nigeria you can email him dr.chalaherbalhome@gmail.com he can also cure (1} HIV And AIDS (2) HPV (3) Diabetes (4) Hepatitis (5) Vitiligo (6) Blood Cancer (7)) Acid reflux (8) STD {9} Fibroids (10) ALS {11} Thyroid {12} Blood pressure, to no more aboutDr chala and his product visit his website on http://drchalaherbalhome.godaddysites.com

    ReplyDelete
  10. I GOT CURED FROM HERPES VIRUS I was diagnosed of HERPES virus and i have tried all I can to get cured but all to no avail,,until I saw a post in a health forum about a herbalist man who prepare herbal medications to cure all kind of diseases including #HERPES virus,at first I doubted if it was real but decided to give it a try,when I contacted this herbalist via his email and he prepared a #HERPES herbal cure and sent it to me via DHL delivery company service, when I received this herbal medicine, he gave me step by direction on how to apply it,after applying the way I was instructed,I was totally cured of this deadly disease called HERPES, all thanks to Dr OGODO Email this great herbal doctor via his email Ogodoherbalhomesolution@gmail.com
    You can also WhatsApp him on +2349044680467
    HE CAN ALSO CURE SICKNESS LIKE
    {1}HIV/AIDS
    {2}DIABETES
    {3}EPILEPSY
    {4} BLOOD CANCER
    {5} HPV
    {6} ALS
    {7} HEPATITIS
    {8}LOVE SPELL
    {9} SICKLE AND ANEMIA
    Only DR OGODO Can Help You I Love You Father.

    ReplyDelete
  11. Good news this is to everyone out there with different health challenges, as I know there are still a lot of people suffering from different health issues and are therefore looking for solutions. I bring you Good news. There is a man called Dr ehiaguna a herbal practitioner who helped cure me from HSV (2), i had suffered from this diseases for the past 5 years and i have spent so much money trying to survive from it. I got my healing by taking the herbal medicine Dr ehiaguna sent to me to drink for about 14 days . 3 days after completion of the dosage, I went for a medical checkup and I was tested free from HSV. all thanks to God for leading me to Dr ehiaguna who was able to cure me completely from this deadly diseases, I’m sharing this so that other people can know of this great healer called Dr ehiaguna because I got to know him through elizabeth who he cured from HIV. I was made to understand that he can cure several other deadly diseases and infections. Don’t die in ignorance or silent and don’t let that illness take your life. Contact Dr ehiaguna through his email  drehiaguna@gmail.com You can also whatsapp/call him on:+2348073908953 . Visit his website  https://effectiveherbalcurehome.blogspot.com/   He cure all forms of disease {1}HIV/AIDS {2}DIABETES {3}EPILEPSY {4} BLOOD CANCER {5} HPV {6} BRAIN TUMOR {7} HEPATITIS {8}COPD{9} SICKLE AND ANAEMIA.etc Be kind enough to share as you received.  

    ReplyDelete